Wednesday, January 14, 2009

Multiple Sclerosis hitting me pretty hard!!!

i'm still feeling kinda crappy. wish i could get out of this depression, ya know. it's not like anyone is reading this blog so i can pretty much say whatever the fuck i want.

my legs are starting to weaken more than they ever have before. sometimes when i get up after sitting for about 2 hours, they kinda wanna buckle up and i have to lean really hard on my walker so i don't fall. it's really scaring me because if Chuck isn't here what the hell would i do? i keep saying i'm gonna keep the walk around with me but i always forget it. DUH! i need help on pointers on how to remember the phone. LOL

my hands are also getting worse. they tingle really bad and are getting spasms more than i ever had, same with my feet. and they hurt SOOO bad. then when i take my meds like it says to take them i walk around like a fuckin zombie or sit in my chair like one. usually my head crashes down on the keyboard and i look really kewl with the imprints on my face. i used to think it was funny, but it's NOT! i'm just a fuckin mess and don't know what to do about it.

i see my Neuro Dr. next tuesday, on the 20th and have a whole page of questions written down for his ass. i need some answers to ALOT of questions. i gotta get up and try to walk around the house alittle bit. i'm starting to get alot of spasms and their one right after the other. dammit!

3 comments:

  1. Hey hon...IM reading..Im listening!I'm so sorry you're having such a rough time...I have a good friend online, who has MS as well..she's had it for quite some time and has gone through hell and back with it. If you like, I could hook you two up, it might be nice to chat with someone who actually KNOWS what you're going through. She's pretty involved with ms organizations too from what I remember..so she might be able to answer alot of your questions you have as well. Let me know hon and I'll email her asap and give her your email ok? In the meantime..don't be too hard on yourself..get some rest when you need it and don't push your body too far...Lots of huggs and love..Jenn

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  2. Jenn, i just now read your comment. i had no idea anyone was even reading what i write. LOL i guess i was pretty hard on myself, i usually am. Especially when i write because i have no real time people to talk to and i keep it all inside, so when i write its like i'm talking to an imaginary person or someone who wants to hear what i say. Seems kind of silly now.
    I'd love for you to hook me up with your friend Jenn. Thank you SO much!
    Hec i don't know anything about this blogging stuff. I would love to make my page like yours or Kathy's from the KCVisions. Her page is beautiful. I don't know how to do anything, so i guess i need to read and try stuff out.
    I love ya hun, your the BEST! And don't you EVER forget it. :-)
    Lots of HUGS and soft kisses on your cheek, ~*Sirena*~

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  3. We are usually the hardest on ourselves, more so than others would be..so that I can definitely understand! And like you, I write what is usually kept within my head...if you read my blog it can be pretty graphic at times!LOL I'm still learning how to do things myself..I still cant figure out how to put people's blinkies with links to them on my page..I tried with Kathy's blog and it just didn't work so I ended up using text links instead.

    I will email Tammy and give her your email addy. I hope you're feeling a bit better today hon. Huggs, Jenn xo

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About Me

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I'm a 56 year old female, happily married and i live in the Tampa Bay area of Florida. I also have had Multiple Sclerosis for the past 8 years and my disease is progressing kind of fast, which sucks real bad!!!!!